Hope and Promise
Oliver is a young boy battling galactosemia, a rare genetic disorder. His parents, Jamie and Erin Siminoff, decided they would devote their lives to helping to cure this disease and many others like it. Watch this video to learn more about the Siminoffs’ hopes and challenges as they support research into this rare disease, and meet Dr. George Daley and Dr. Gerard Berry, who are spearheading a research collaboration between stem cells and galactosemia.
Amiel and Damali Reid
Damali and Amiel Reid (above), two siblings who are living with sickle cell anemia, have taken different approaches to educating themselves and others about the disease. Sickle cell anemia is a genetic blood disorder affecting an estimated 70,000 to 100,000 people in the United States. Learn more about their struggles with the disease and their hopes for a cure by watching this video, which also features their mother, Lynnie, who now works here at Children’s.
Barry Siegel was an avid bike rider until a car accident left him with fractured vertebrae. Since then, he has been spreading the word of stem cell research by raising money for spinal cord programs at Children’s Hospital Boston and Hadassah Hospital in Israel. This partnership has allowed for more intensive stem cell research efforts aimed at spinal cord injuries and other neurological disorders. Learn more by watching this video.